PWSA USA

www.pwsausa.org

Note:  National organization for Prader-Willi Syndrome.  There is a wealth of information available on this website including on-line support groups, crisis hotline, Package of Hope for new diagnosis, etc.

Bureau of Developmental Disabilities Services

7155 Shadeland Station #160

Indianapolis, IN 46256

(317)-232-7842

Note:  Contact this office to apply for Medicaid Waiver.  It is important to do this as soon as possible.  There is a 10-12 year waiting list once your application has been submitted.

First Steps

1-800-441-STEP

Note:  Developmental services for ages 0 to 3 years

The ARC of Indiana

107 N. Pennsylvania Street, Suite 300

Indianapolis, IN 46204

www.arcind.org

Note:  Advocation for people with developmental disabilities and their families since 1956

MetLife (Met DESK)

Division of Estate planning for Special Kids

Gordon F. Homes, Jr., CFP, ChFC, CLU

Senior Financial Planner

8520 Allison Pointe Boulevard, Suite 300, Indianapolis, IN 46250

(317)-567-2005 or 1-800-903-6380 ext 2005

ghomes@metlife.com

Note:  Contact for estate planning, trusts, etc. for families with children with special needs

Indiana University Medical and Molecular Genetics

Bryan Hainline, M.D., Ph.D.

Biochemical Genetics Clinic

Riley Outpatient Center, MSA 3

Indianapolis, IN 46202

Office:  317-274-3966

Fax:  317-278-0936

After Hours:  274-5000 (ask for Metabolism Dr. on call)

Note:  Dr. Hainline is on the Clinical Advisor Board for PWSA USA.